Living with Cauda Equina Syndrome: Real Talk, Real Challenges, Real Life

Cauda Equina Syndrome (CES) is one of those conditions that people talk about clinically, but rarely do we get a full picture of what it actually feels like to live with it day to day. In the Living with Cauda Equina Syndrome video, we get just that — an honest, unfiltered look at the physical, emotional and practical realities faced by those affected. This is not just another medical explainer, this is lived experience, and it shines a light on how CES impacts everyday life far beyond the hospital walls.

The video focuses on the everyday side of Cauda Equina Syndrome, stepping away from textbook definitions and clinical jargon and into what life actually looks like for people managing this condition. Viewers will hear about mobility challenges, chronic pain, bladder and bowel management issues, and the emotional resilience it takes to cope with sudden and lasting changes. It emphasises that CES is not just a medical emergency and a series of symptoms, but a life-altering experience that affects independence, relationships and identity.

Whether you are newly diagnosed, supporting someone with CES, or part of the wider spinal injury community like us at Cauda Equina Spinal Cord Injury (CESCI), this video is a powerful reminder that the journey with CES is as varied as the people walking it.

Special thank you to Bolt Burdon Kemp.