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Announcing CESCI Partnership with SIA: Our Strategic Collaboration with the Spinal Injuries Association

Updated: May 30

The logos of CESCI and SIA, and text saying "Big News! Strategic Partnership Announcement"

We are thrilled to announce our new partnership with the Spinal Injuries Association (SIA). This collaboration represents a significant step forward in our mission to support individuals living with cauda equina syndrome (CES).


At Cauda Equina Spinal Cord Injury (CESCI), we are dedicated to helping people with CES find the resources and support they need. Our community is built on understanding and shared experiences, providing a safe space for individuals to connect, find information, and support each other. Through our website, we offer blogs, events, and links to valuable resources, all aimed at creating a supportive environment for those living with CES.


Our work with SIA and the NHS last year resulted in the development of a new care pathway for people with cauda equina syndrome. This initiative has significantly increased the identification of CES cases within the health system. Our strategic partnership with SIA will enhance our ability to meet the growing demand for support and advocate more effectively for the services and treatment our community needs from statutory services.


We want to assure our members that this strategic partnership will not change the way CESCI operates. Instead, it will allow us to collaborate closely with SIA, providing access to additional resources and support. Our commitment to our members remains steadfast, and the only change will be the enhancement of the services and resources available to you.


Nigel and Allison Whitehorn, co-founders of CESCI, expressed their enthusiasm for this partnership:

"We are excited to be working together with SIA, who have a great understanding of the challenges faced daily, living with cauda equina/spinal cord injury, which is not recognized and understood as an SCI by many medical professionals. We are proud SIA and CESCI will be working alongside one another in partnership. This will enable us all to grow stronger together in the future, helping CES people be understood."

Dan Burden, Head of Services at SIA, shared his thoughts on the collaboration:

"We have been recommending CESCI to the people we support with cauda equina syndrome for a long time now. CESCI offers a safe place for people to come together, speak with others who have been through what they are going through, and find the peer support which we know is so essential after spinal cord injury. This partnership will help both of our organizations to grow stronger together, better meeting the needs of the growing number of people diagnosed with CES every year."

We look forward to a successful and impactful partnership with SIA, working together to enhance the lives of those affected by cauda equina syndrome.


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