Helpful Resources
Articles, Documents & Links
As part of our offerings, Cauda Equina Spinal Cord Injury provides access to additional information including publications, articles, links and more. Here you can find all of our available resources that might be helpful.
Files & Downloads
Helpful Websites
Videos
Files
Navigator by KMT Medical Overview
Navigator is a patient support service that is created for people with a spinal cord injury (SCI) who have recently left acute care/rehab and returned home. It is designed to help you find your way by providing useful information as well as connecting you with a personal expert to help with specific needs. Think of Navigator as a one-stop destination for gathering the information needed to live on your own terms. A link to this can be found on the links section of this page.
SIA and BBK - Information About Intimate Issues
A series of webinars bought to you by Bolt Burdon Kemp, and Spinal Injuries Association, talking through intimate issues faced by those living with spinal cord injury.
Peristeen® Plus transanal irrigation system for managing bowel dysfunction (MTG36)
This document provides an in-depth introduction to the Peristeen® Plus transanal irrigation system for managing bowel dysfunction (MTG36), and serves as an overview of the guidance released by the National Institute for Health and Care Excellence (NICE). It outlines the significant cost implications of constipation to the NHS, and the profound impact this condition has on patients' mental and physical health, as well as their overall treatment efficacy. The document also explores national guidelines and best practices developed over the past decades, offering a detailed review of advancements in neurogenic bowel dysfunction (NBD) treatments. The specific product information on Peristeen Plus, its efficacy as a bowel emptying technique, and its unique evaluation by NICE's Medical Technology Evaluation Programme (MTEP) are presented in detail. The importance of reading this document lies in its case studies and evidence-based approach, enabling healthcare professionals to understand the significance of this treatment and its potential benefits for patient outcomes.
Videos & Podcasts
Cauda Equina Syndrome - Interview with Allison Whitehorn
Julie Marsh spoke with Allison Whitehorn. Allison is living with Cauda Equina and speaks personally about her overall experience from her diagnoses to living through Covid-19 with CES.
The Boyes Turner Podcast
Spinal Cord Injury - causes, concerns, rehabilitation and legal process
In this episode of the Boyes Turner Medical Negligence Podcast, Julie Marsh and Claire Roantree discuss spinal cord injury cases. As partners at Boyes Turner, Julie and Claire have extensive experience in dealing with cases involving spinal cord injuries and understand the challenges and concerns that clients face.
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Helpful Links
Information and learning material about Cauda Equina Syndrome, and other medical blogs, articles, etc.
Resources and links to places that can offer support and assistance, around living with CES.
About Cauda Equina Syndrome
Complete Continence Learning Centre
Whether you're wondering about neurogenic bladder dysfunction, how the urinary system works or what an intermittent catheter is—even if you feel you could write a book on these topics—these resources are for you. Here, you'll find answers to lifestyle questions, learn what's new, and discover lots of information that will help you live well.
In December 2018 the British Association of Spinal Surgeons (“BASS”) and Society of British Neurological Surgeons (“SBNS”) published recommendations for changes to the management of suspected and confirmed Cauda Equine Syndrome (“CES”).
Bolt Burdon Kemp LLP
Bolt Burdon Kemp LLP
Cauda equina syndrome (CES) is a condition that occurs when the nerves at the base of the spinal cord are compressed. It can come on suddenly, and usually requires emergency surgery. Early diagnosis and treatment are vital for the best chance of recovery as, if left untreated, CES can result in permanent paralysis as well as incontinence.
Bolt Burdon Kemp LLP
This blog discusses Cauda Equina Syndrome (CES), a rare condition caused by the compression of the nerves at the very base of the spinal cord. The author, a solicitor specializing in spinal cord injury, writes about the devastating impact of a CES diagnosis and the need for proper rehabilitation to help patients recover. The blog highlights a lack of access to rehabilitation for CES patients and the ongoing failure to refer them to the specialist care they require. The author, together with a clinical specialist physiotherapist in spinal cord injury, explains the discrepancies in the referral process and the need for multidisciplinary rehabilitation tailored to each individual patient. The blog may help people with CES understand their condition and the rehabilitation process and encourage healthcare professionals to ensure patients receive appropriate treatment.
Earlier this year the Spinal Injury Team at Bolt Burdon Kemp hosted a series of free Women’s Health webinars in partnership with the Spinal Injuries Association. The series was called from “Menstruation to Menopause a SCI women’s journey” and as part of that issues of puberty, sex, parenting, ageing and the menopause were discussed.
Bolt Burdon Kemp LLP
Damian Smith of the Spinal Injuries Association (SIA), a specialist spinal nurse, with decades of relevant experience gives an informative presentation titled “The Physical Side of Sex and Relationships” in the first webinar in Bolt Burdon Kemp’s series Sex, Relationships and the SCI Man.
Bolt Burdon Kemp LLP
Bolt Burdon Kemp LLP
The blog "Life after spinal cord injury – It’s ok to not be ok" discusses the mental health impact of spinal cord injury (SCI). With up to 30% of SCI patients showing signs of depression, the blog raises awareness of the lack of specialist mental health support available to SCI survivors. It highlights the importance of treating mental health as seriously as physical health and the various support options available including support groups, lifestyle changes, psychotherapy and medication. Anyone who has experienced an SCI, or knows someone who has, may benefit from reading this blog to better understand the mental health challenges that SCI survivors face.
Resources & Tools
Navigator by KMT Medical
Navigator is a patient support service that is created for people with a spinal cord injury (SCI) who have recently left acute care/rehab and returned home. It is designed to help you find your way by providing useful information as well as connecting you with a personal expert to help with specific needs. Think of Navigator as a one-stop destination for gathering the information needed to live on your own terms. More information is available in a document above.
Motability
Motability are a charity that can help with your motoring advice, help with adaptive vehicles, finding the correct vehicle for your disability and also help with disabled scooters and wheelchairs.
Living with Cauda Equina Syndrome can be life changing, so we have teamed up with the Backup Charity. Their aim is :
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To inspire people affected by spinal cord injury to transform their lives
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To challenge perceptions of disability
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To deliver services that build confidence and independence and offer a supportive network
They provide wheelchair training, Activity courses, Peer support, Mentoring, etc.​
Hidden Disabilities have teamed up with National Highways, and you can get your free Sunflower for the car.