Library_Stock_Image_edited.jpg

Helpful Resources

Articles, Documents & Links

As part of our offerings, Cauda Equina Spinal Cord Injury provides access to additional information including publications, articles, links and more. Here you can find all of our available resources that might be helpful.

Files & Downloads

Helpful Websites

Videos

Files

The Free Speech Podcast Episode 005 - Allison Whitehorn and CES

This is your File description. Concisely describe the content of your file and make sure to highlight your contact details for further questions and remarks.

Navigator by KMT Medical Overview

Navigator is a patient support service that is created for people with a spinal cord injury (SCI) who have recently left acute care/rehab and returned home. It is designed to help you find your way by providing useful information as well as connecting you with a personal expert to help with specific needs. Think of Navigator as a one-stop destination for gathering the information needed to live on your own terms. A link to this can be found on the links section of this page.

Bringing a Medical Negligence Claim

This document is a checkpoint, before going down any legal route. A very useful guide, for a legal claim.

Videos

Cauda Equina Syndrome - Interview with Allison Whitehorn

Julie Marsh spoke with Allison Whitehorn. Allison is living with Cauda Equina and speaks personally about her overall experience from her diagnoses to living through Covid-19 with CES.

Working with:

Aspire Logo.png
BBK Logo.jpg
BoyesTurnerLogo.png
ColoplastLogo.jpg
FittleworthLogo.png
HollisterLogo.png

Helpful Links

Information and learning material about Cauda Equina Syndrome, and other medical blogs, articles, etc.

Resources and links to places that can offer support and assistance, around living with CES.

About Cauda Equina Syndrome

Hollister Continence Care

Hollister serve people with neurogenic bladder and bowel dysfunction and those who care for them. The are committed to helping empower those who use our products with the independence to maintain a rewarding, dignified life.

Complete Continence Learning Centre

Whether you're wondering about neurogenic bladder dysfunction, how the urinary system works or what an intermittent catheter is—even if you feel you could write a book on these topics—these resources are for you. Here, you'll find answers to lifestyle questions, learn what's new, and discover lots of information that will help you live well.

Hollister Incontence Education Tools

Useful continence care resources to increase your knowledge and help you live life to the fullest.

In December 2018 the British Association of Spinal Surgeons (“BASS”) and Society of British Neurological Surgeons (“SBNS”) published recommendations for changes to the management of suspected and confirmed Cauda Equine Syndrome (“CES”).

Bolt Burdon Kemp LLP

Bolt Burdon Kemp LLP

Cauda equina syndrome (CES) is a condition that occurs when the nerves at the base of the spinal cord are compressed. It can come on suddenly, and usually requires emergency surgery. Early diagnosis and treatment are vital for the best chance of recovery as, if left untreated, CES can result in permanent paralysis as well as incontinence.

Cauda equina syndrome (‘CES’) is a rare condition and is estimated to affect between one to three people in every 100,000 of the population in the UK. 

Bolt Burdon Kemp LLP

Earlier this year the Spinal Injury Team at Bolt Burdon Kemp hosted a series of free Women’s Health webinars in partnership with the Spinal Injuries Association. The series was called from “Menstruation to Menopause a SCI women’s journey” and as part of that issues of puberty, sex, parenting, ageing and the menopause were discussed.

Bolt Burdon Kemp LLP

Damian Smith of the Spinal Injuries Association (SIA), a specialist spinal nurse, with decades of relevant experience gives an informative presentation titled “The Physical Side of Sex and Relationships” in the first webinar in Bolt Burdon Kemp’s series Sex, Relationships and the SCI Man.

Bolt Burdon Kemp LLP

Resources & Tools

Navigator by KMT Medical

Navigator is a patient support service that is created for people with a spinal cord injury (SCI) who have recently left acute care/rehab and returned home. It is designed to help you find your way by providing useful information as well as connecting you with a personal expert to help with specific needs. Think of Navigator as a one-stop destination for gathering the information needed to live on your own terms. More information is available in a document above.

Motability

Motability are a charity that can help with your motoring advice, help with adaptive vehicles, finding the correct vehicle for your disability and also help with disabled scooters and wheelchairs.

Living with Cauda Equina Syndrome can be life changing, so we have teamed up with the Backup Charity. Their aim is : 

  • To inspire people affected by spinal cord injury to transform their lives

  • To challenge perceptions of disability

  • To deliver services that build confidence and independence and offer a supportive network

They provide wheelchair training, Activity courses, Peer support, Mentoring, etc.​

Hidden Disabilities have teamed up with National Highways, and you can get your free Sunflower for the car.